“when we were on the road, we’ve got the family all together. Then the decision maker, the healthcare power of attorney steps away because her agenda is different than the patient and the other family members (about the future health care decisions). The family is saying how they really want comfort, care, to allow the natural course of illness, and you know, a good end of life. And the other family members say no, and that's that break of the trust you know? When you have a surrogate decision maker, you're saying “I'm trusting you to make the decisions that I would make in the situation”. And this family member is saying “no, I'm going off on my own. I'm making the decisions and it's my thing.”